For more information about Parkinson's Disease:

Webinar on recognizing the early signs of Parkinson’s - Parkinson’s Foundation
https://www.youtube.com/watch?v=_rMsIQvWVV8

Other parkinsonion conditions - Parkinson’s Foundation
https://www.parkinson.org/Understanding-Parkinsons/What-is-Parkinsons/Types-of-Parkinsonisms#:~:text=Parkinsonism%20is%20a%20term%20used,of%20these%20symptoms%2C%20mimicking%20Parkinson's

Genetic causes of Parkinson’s - Michael J Fox Foundation
https://www.michaeljfox.org/news/parkinsons-genetics

Webinar on sleep disorders and acting out dreams - Michael J Fox Foundation
https://www.youtube.com/watch?v=eGyMPilsR08

Terms

Dopamine - WebMD
https://www.webmd.com/mental-health/what-is-dopamine

Tremor and Resting Tremor - Parkinson's Foundation,
https://www.parkinson.org/understanding-parkinsons/symptoms/movement-symptoms/tremor

Rapid eye movement (REM) sleep behavior disorder - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/rem-sleep-behavior-disorder/symptoms-causes/syc-20352920#:~:text=Rapid%20eye%20movement%20(REM)%20sleep,sometimes%20called%20dream%2Denacting%20behavior.

Olfactory nerve - nerve relating to the sense of smell

Hoehn & Yahr staging - Parkinson's Foundation
https://www.parkinson.org/understanding-parkinsons/what-is-parkinsons/stages

Axial symptoms - these include symptoms such as walking disorders, posture disorders, and speech and swallowing disorders

Hand Dystonia : "excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder" - Dystonia Foundation
https://dystonia-foundation.org/what-is-dystonia/types-dystonia/hand-dystonia/#:~:text=Hand%20dystonia%20is%20a%20focal,of%20hand%20and%20arm%20muscles.

DaTscan - test to help in the diagnosis of Parkinson’s, read more on APDA
https://www.apdaparkinson.org/article/what-is-a-datscan-and-should-i-get-one/

Carbidopa-levodopa - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/diagnosis-treatment/drc-20376062

Sinemet, Parcopa, Duopa and other brand names for Sinemet - on Medscape
https://reference.medscape.com/drug/sinemet-rytary-carbidopa-levodopa-343043

Dopamine agonists (pramipexole, ropinirole) - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/diagnosis-treatment/drc-20376062

Dyskinesia- Parkinson Foundation
https://www.parkinson.org/understanding-parkinsons/symptoms/movement-symptoms/dyskinesia#:~:text=Dyskinesias%20are%20involuntary%2C%20erratic%2C%20writhing,slow%20and%20extended%20muscle%20spasms.

Deep Brain Stimulation - Mayo Clinic
https://www.mayoclinic.org/tests-procedures/deep-brain-stimulation/about/pac-20384562#:~:text=Deep%20brain%20stimulation%20involves%20creating,Stroke

GERD, Gastroesophageal reflux disease - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/gerd/symptoms-causes/syc-20361940

Helplines

Parkinson’s Foundation Helpline - 1-800-4PD-INFO (473-4636)

Podcasts

When Life Gives You Parkinson’s Podcast
https://www.parkinson.ca/resources/when-life-gives-you-parkinsons-presented-by-parkinson-canada/

Substantial Matters: Life and Science of Parkinson’s Podcast
https://www.parkinson.org/resources-support/online-education/podcast

Learning About Parkinson's Podcast
https://www.parkinsons.org.uk/professionals/events-and-learning/podcast-learn-about-parkinsons#:~:text=Learn%20about%20Parkinson's%20is%20a,health%20and%20social%20care%20professionals

Young Onset 101 podcast episode - Parkinson’s Foundation
https://www.parkinson.org/Living-with-Parkinsons/Resources-and-Support/Podcast/010-Young-Onset-Parkinsons-101?_ga=2.253462601.174453072.1581604835-2075636854.1536870373

Parkinson's Life Podcast
https://parkinsonslife.eu/category/podcasts/

The Michael J Fox Foundation Parkinson’s Podcast
https://www.michaeljfox.org/podcasts

Parkinson's Foundation Podcast
https://www.parkinson.org/taxonomy/term/234

Parkinson's Podcast by the Davis Phinney Foundation
https://davisphinneyfoundation.org/the-parkinsons-podcast/

Community Groups:

Choirs improving PD symptoms
https://www.brainandlife.org/articles/after-a-researcher-approached-a-group-of-people-with-parkinsons

PD Avengers
https://www.pdavengers.com/

Guests’ Books

Ending Parkinson’s Disease: a Prescription for Action by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD
https://www.amazon.com/Ending-Parkinsons-Disease-Prescription-Action/dp/154172450X/ref=sr_1_1?crid=QMR03DY9M4JX&keywords=ending+parkinsons+disease+book&qid=1658760126&sprefix=ending+park%2Caps%2C182&sr=8-1

Talking about Parkinson's

Talking to your Children about Parkinson’s - Michael J Fox Foundation
https://www.michaeljfox.org/news/new-guide-talking-children-and-teens-about-parkinsons


My parent has parkinson’s fact sheet - Parkinson’s Foundation
https://www.parkinson.org/pd-library/fact-sheets/My-Parent-Has-Parkinson-s-What-Does-It-Mean


Talking to your employer about PD - Parkinson’s Foundation
https://www.parkinson.org/living-with-parkinsons/resources-and-support/podcast/057-Talking-to-Your-Employer?_ga=2.93756125.1110289606.1582046491-1342868735.1549912294

Building a care team

Movement disorder specialist directory - International Parkinson’s and Movement Disorder Society
https://mds.movementdisorders.org/directory/

Find a PD expert care center - Parkinson’s Foundation
https://www.parkinson.org/search


Building a care team - Michael J Fox Foundation
https://www.michaeljfox.org/building-care-team

Support after diagnosis

Early signs of PD- Brain and Life Magazine (AAN)
https://www.brainandlife.org/the-magazine/online-exclusives/the-neurologist-is-in-5-possible-precursors-to-parkinsons-disease/

Guide to the early years after diagnosis - Michael J Fox Foundation
https://www.michaeljfox.org/resources-people-newly-diagnosed-parkinsons

Medication

Medication explained - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/diagnosis-treatment/drc-20376062


Webinar about on/off time - Michael J Fox foundation
https://www.youtube.com/watch?v=iVBscigUMRI


Parkinson’s Drugs- Parkinson’s UK Resource
https://www.parkinsons.org.uk/information-and-support/parkinsons-drugs


FDA Approved Medications- APDA
https://www.apdaparkinson.org/what-is-parkinsons/treatment-medication/medication/

Alternative Surgical Treatment Option

Deep Brain Stimulation - Parkinson's Org
https://www.parkinson.org/Understanding-Parkinsons/Treatment/Surgical-Treatment-Options/Deep-Brain-Stimulation

Clinical Trials

Clinical Trials- Parkinson’s Foundation
https://www.parkinson.org/living-with-parkinsons/treatment/clinical-trials


Clinical Trials Recruiting- Cure Parkinsons
https://cureparkinsons.org.uk/clinical-trials-recruiting/

The Benefits of Exercise

Study to show exercise improves depression in Parkinson’s patients
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5531507/


Benefits of exercise for slowing parkinson’s disease - Parkinson's Foundation
https://www.parkinson.org/Understanding-Parkinsons/Treatment/Exercise/Neuroprotective-Benefits-of-Exercise


Downloadable resources on benefits of exercise for PD - Stanford Medicine
https://med.stanford.edu/parkinsons/treating-PD/exercise.html#:~:text=When%20you%20have%20Parkinson's%20disease,things%20you%20love%20to%20do.


Why you should exercise - Parkinson’s Foundation
https://www.parkinson.org/Understanding-Parkinsons/Treatment/Exercise/Neuroprotective-Benefits-of-Exercise

Exercise guides

Skills and Wellness channel - Youtube - Mobility videos
https://www.youtube.com/watch?v=rdjTNOw4Qe4


Parkinson’s foundation - Youtube - Fitness Friday videos
https://www.youtube.com/watch?v=pWqext64kxM


Step by Step Physio Movements - Parkinson’s Wellness Recovery
https://www.pwr4life.org/pwrmoves-video/


MENTOR Program
https://mentor.nchpad.org/


Exercise videos - Brian Grant Foundation
https://briangrant.org/exercisevideos/

Home Adaptations

Easy changes to make around the house - Davis Phinney Foundation Video
https://www.youtube.com/watch?v=7uH8QSSGgpM


Bathroom and grooming aids - Parkinson’s Foundation
https://www.parkinson.org/living-with-parkinsons/management/activities-daily-living/bathing-grooming


Webinar on creating a safe home environment - Parkinson’s Foundation
https://www.youtube.com/watch?v=gPH0zcKRnSc&list=PLDGRDRM479GuSdUq2ac5H2RxAqItsJpfD

Diet and nutrition

Guide to eating a Mediterranean diet - Michael J Fox Foundation
https://www.michaeljfox.org/sites/default/files/media/document/041819_MJFF_DIET_GUIDE_0_1.pdf


Meal time booklet - Parkinson’s Foundation
https://www.parkinson.org/Living-with-Parkinsons/Managing-Parkinsons/Activities-of-Daily-Living/Mealtime


Information of pro and prebiotics - Parkinson's Foundation
https://www.parkinsons.org.uk/news/gut-bacteria-could-guard-against-parkinsons

Common symptoms

Studies to show constipation as common symptom of Parkinson’s disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5856748/
https://www.frontiersin.org/articles/10.3389/fneur.2019.00621/full


Webinar on gut related issues in Parkinson’s Disease - Michael J Fox Foundation
https://www.michaeljfox.org/webinar/gut-bacteria-check-parkinsons-role-microbiome

Adaptive Tools

Swivel Spoons - Various types available on Amazon.com
https://www.amazon.com/swivel-spoon/s?k=swivel+spoon


Lift steady table ware - Product website
https://www.liftware.com/steady/


Wrist weights - Various types available on Amazon.com
https://www.amazon.com/Wrist-Weight-Set-Weightlifting-Gymnastic/dp/B0737CFR3S/ref=sr_1_7


Weighted bracelet - Product website
https://alexhealthjewelry.com/collections/weighted-bracelets

Voice and swallowing support

Speech Therapist finder - Parkinson’s voice project
http://www.parkinsonvoiceproject.org/providers.aspx


LSVT Program Finder
https://www.lsvtglobal.com/LSVTFindClinicians


Live Home Practice Sessions - Parkinson’s Voice Project
https://www.parkinsonvoiceproject.org/SpeechExercises


Speech & Swallowing Issues - Parkinson’s Foundation
https://www.parkinson.org/understanding-parkinsons/symptoms/non-movement-symptoms/speech-swallowing

Adaptive Tools

Pocket talker device - Amazon
https://www.amazon.com/Williams-Sound-PockeTalker-Amplifier-Microfiber/dp/B00Q72Z5PU/ref=sr_1_1_sspa?keywords=pocket+talker&qid=1659029146&sr=8-1-spons&psc=1&smid=A2TORNECBMNNW4&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUEyS1NOVk5WVzNHSzlHJmVuY3J5cHRlZElkPUEwMjgwOTk3T1RURDVENkc5QVVEJmVuY3J5cHRlZEFkSWQ9QTAxMDg1NDMyUkhOUUhQVURNWTZLJndpZGdldE5hbWU9c3BfYXRmJmFjdGlvbj1jbGlja1JlZGlyZWN0JmRvTm90TG9nQ2xpY2s9dHJ1ZQ==

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