Living with Alzheimer's Disease Links and Resources
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Each episode of the Alzheimer's Disease Podcast includes resources where listeners can learn more. Below is a list of the resources mentioned throughout the show– links to these sites can also be found on healthunmuted.com/resources.
For more information about Alzheimer's Disease:
Alzheimer's Association information about Alzheimer's:
https://www.alz.org/alzheimers-dementia/what-is-alzheimers
National Institutes of Health basic information about Alzheimer's:
https://www.nia.nih.gov/health/alzheimers/basics
Healthline facts about Alzheimer's:
https://www.healthline.com/health/alzheimers-facts
BrightFocus information about tau protein:
https://www.brightfocus.org/alzheimers/article/tau-protein-and-alzheimers-disease-whats-connection
MayoClinic information about the stages of Alzheimer's:
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers-stages/art-20048448
History of Alzheimer's disease
Bright Focus history of Alzheimer's disease:https://www.brightfocus.org/alzheimers/article/history-alzheimers-disease
Alzheimer's Society history of Alzheimer's disease:
https://alzheimer.ca/en/about-dementia/what-alzheimers-disease/history-behind-alzheimers-disease
About Mild Cognitive Impairment (MCI)
Alzheimer's Association information about mild cognitive impairment:https://www.alz.org/alzheimers-dementia/what-is-dementia/related_conditions/mild-cognitive-impairment
Cleveland Clinic information about mild cognitive impairment:
https://my.clevelandclinic.org/health/diseases/17990-mild-cognitive-impairment
Lifestyle changes to treat Alzheimer's disease
Alzheimer’s Society information about risk factors and prevention: https://www.alzheimers.org.uk/about-dementia/risk-factors-and-prevention/how-reduce-your-risk-alzheimers-and-other-dementias
HelpGuide article on lifestyle changes for Alzheimer's disease:
https://www.helpguide.org/articles/alzheimers-dementia-aging/preventing-alzheimers-disease.htm#:~:text=That%20means%20plenty%20of%20vegetables,by%20reducing%20beta%2Damyloid%20plaques.
Healthline information about risk factors and lifestyle changes:
https://www.healthline.com/health-news/alzheimers-risk-factors-lifestyle-changes
WebMD article about the MIND Diet:
https://www.webmd.com/alzheimers/what-to-know-about-mind-diet
Memory Cafe directory:
https://www.memorycafedirectory.com/
Patient support and advocacy groups
Alzheimer’s Speaks:https://www.alzheimersspeaks.com/resource-directory
Alz Authors:
https://alzauthors.com/
Alzheimer’s Association Local Chapters (US):
https://www.alz.org/local_resources/find_your_local_chapter
Alzheimer’s Society support groups (UK):
https://www.alzheimers.org.uk/find-support-near-you
Dementia Friendly America:
https://www.dfamerica.org/
Hilarity for Charity:
https://wearehfc.org/programs/
Caregiver support
Family Caregiver Alliance:https://www.caregiver.org/connecting-caregivers/support-groups/
Memory Cafes:
https://www.alz.org/wi/helping-you/early-stage-programs/memory-cafe
Memory Cafe Directory:
https://www.memorycafedirectory.com/
Guest’s books
Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It:https://www.amazon.com/Seven-Steps-Managing-Your-Memory/dp/0190494956
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it:
https://www.amazon.com/Problem-Alzheimers-Science-Culture-Politics/dp/125021873X
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith:
https://www.amazon.com/God-Still-Remembers-Devotions-Alzheimers/dp/1518647154
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease:
https://www.amazon.com/Purple-Brick-Road-Early-onset-Alzheimers/dp/B084QGRL6D
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease:
https://www.amazon.com/Tattoo-Brain-Neurologists-Personal-Alzheimers/dp/1108838936
Dr Phillip Sloane - Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia:
https://www.amazon.com/Alzheimers-Medical-Advisor-Caregivers-Experienced/dp/1934716669
Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope:
https://www.amazon.com/Dementia-Inside-Doctors-Personal-Journey/dp/0281080690
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's:
https://www.amazon.com/Running-All-Over-World-Early-Onset/dp/1636921949
Diagnosis information and what to expect at an appointment
National Institute of Aging information about diagnostic tests for Alzheimer's disease:https://www.nia.nih.gov/health/how-alzheimers-disease-diagnosed
Alzheimer’s Society information about symptoms and diagnosis of Alzheimer's:
https://www.alzheimers.org.uk/about-dementia/symptoms-and-diagnosis/dementia-diagnosis/dementia-tests
Alzheimer's Association information about cognitive assessments:
https://www.alz.org/professionals/health-systems-clinicians/cognitive-assessment
Mayo Clinic information about diagnosis of Alzheimer's disease:
https://mayocl.in/3mBcOgV
Making changes to environment
Home safety tips from MayoClinic:https://www.mayoclinic.org/healthy-lifestyle/caregivers/in-depth/home-safety-tips/art-20046785
Tips from Social Care Institute for Excellence about making environmental changes to the home:
https://www.scie.org.uk/dementia/supporting-people-with-dementia/dementia-friendly-environments/
Alzheimer's.org resources and support for making changes to the home (UK):
https://www.alzheimers.org.uk/get-support/staying-independent/grants-help-person-dementia-equipment-home#content-start
Helping someone with personal care
Caregiving tips from National Institutes of Health:https://www.nia.nih.gov/health/bathing-dressing-and-grooming-alzheimers-caregiving-tips
BetterHealth (Australia) tips for helping with hygiene:
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/dementia-hygiene
Alzheimer's Association brochure on personal care:
https://www.alz.org/national/documents/brochure_personalcare.pdf
Social Care Institute for Excellence (UK) insights into how to deal with difficult situations:
https://www.scie.org.uk/dementia/living-with-dementia/difficult-situations/refusing-help.asp
WebMD, tips for handling outbursts:
https://www.webmd.com/alzheimers/alzheimers-aggression
Alzheimer's Association, tips for managing anger:
https://www.alz.org/help-support/caregiving/stages-behaviors/agression-anger
Things not to do/say
Alzheimer's Society what not to say to someone with Alzheimer's:https://www.alzheimers.org.uk/blog/language-dementia-what-not-to-say
Alzheimer's San Diego dos and don'ts of communicating with someone with dementia:
https://www.alzsd.org/dos-and-donts-of-compassionate-communication-dementia/
Advanced care planning
Finding geriatric care managers:https://www.caring.com/senior-care/geriatric-care-managers/
ElderCare Locator from the US Administration on Aging:
https://eldercare.acl.gov/Public/Index.aspx
Alzheimer's Association chapters:
https://www.alz.org/
Alzheimer's Association guide for advance planning:
https://www.alz.org/help-support/i-have-alz/plan-for-your-future
Finding your nursing home ombudsman:
https://theconsumervoice.org/get_help
Alzheimer's Society (Canada):
https://alzheimer.ca/en
Alzheimer's Society (UK):
https://www.alzheimers.org.uk/get-support/help-dementia-care
For information about medication
National Institutes of Health information about how Alzheimer's disease is treated:https://www.nia.nih.gov/health/how-alzheimers-disease-treated and
https://www.ncbi.nlm.nih.gov/books/NBK279358/#:~:text=medicine%20Ginkgo%20biloba.-,Cholinesterase%20inhibitors,improve%20the%20symptoms%20of%20Alzheimer's.
For information about therapies
American Physical Therapy Association:https://www.apta.org/
American Speech Language and Hearing Association:
https://www.asha.org/
Total Health Works:
https://totalhealthworks.co.uk/
Speech Therapy Works:
https://speechtherapyworks.co.uk/
Information from WebMD about treating chewing and swallowing problems:
https://www.webmd.com/alzheimers/chewing-swallowing-problems
For information about clinical trials:
Alzheimer's.gov information about clinical trials:https://www.alzheimers.gov/clinical-trials
Information about Aducanumab
National Institutes of Health information about aducanumab:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8491638/
Alzheimer's Association information about aducanumab:
https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.12213 and
https://www.alz.org/alzheimers-dementia/treatments/aducanumab
Nature.com information about aducanumab:
https://www.nature.com/articles/d41586-021-01546-2%20
Food and Drug Administration approval of aducanumab:
https://www.fda.gov/news-events/press-announcements/fda-grants-accelerated-approval-alzheimers-drug
